What is akathisia?

Akathisia is an extremely distressing neurological disorder characterized by severe agitation, an inability to remain still, and an overwhelming sense of terror. It is primarily a medication side effect. People with this condition can quickly become suicidal and even homicidal. Akathisia is far more common than has been reported in the past and remains dangerously under-diagnosed and under-reported today.1

Who are we?

The “Akathisia Alliance for Education and Research” is a nonprofit organization formed by people who have experienced it. Our group includes biochemists, psychologists, nurses, attorneys, business owners, and others who have survived akathisia, suicidality, and devastating personal losses due, in part, to a lack of awareness by medical professionals. We have come together from all walks of life to battle these things we all have in common, so we can help prevent them from happening to others.

How can we help?

  • As our group includes medical professionals, we are uniquely positioned to act as a liaison between patients, clinicians, and researchers.
  • We have a database of patients who have or have had akathisia and are willing to participate in research studies that do not include drug trials.
  • As people who have experienced akathisia, we are in a unique position as researchers. Many of our members have spent years battling suicidality while poring over medical journals and brainstorming in support groups. We will be reporting the results of our informal research in a Journal of Akathisia. We hope this journal will provide an environment for collaboration between neurology and psychiatry and a foundation for future research.