We are glad you’ve found our website and will do our best to help you get through the nightmare of akathisia. The Alliance founders have also experienced it and understand how horrific it is.
We regret that we cannot advise you regarding medications or supplements, and we cannot provide one-on-one support at this time. We will, however, do our best to help you get an akathisia diagnosis and prevent you from being involuntarily hospitalized, force-drugged, and/or abandoned by family and friends. We are also working to educate your doctors and family members so they will understand how they can help you. If funding permits, we will provide you with materials such as medical alert bracelets to help keep you safe.
Please see the “Resources” section for a list of support groups and websites for further information, such as medication-tapering advice.
For your protection
We have designed a “Patient Care Information” card for you to carry with you that may help keep you safe. It can be shown to health care providers and first responders to educate them regarding akathisia and which medications you should not be given. It may also help prevent you from being misdiagnosed, involuntarily hospitalized, and/or force medicated. While there is no guarantee the information on this card will influence your health care provider’s decisions in any way, they will know you have our support.
If you donate $5 or more, we will send you a laminated Patient Care Information card, as pictured below. If you would like one, but cannot afford to donate $5, you can email us at [email protected] to let us know. If you can donate more than $5 to help ensure that everyone gets a card or to fund our other projects, we would greatly appreciate it.
Communicating with your family
We highly recommend that you ask your friends and family to visit our website and watch our “This is Akathisia” video. It is posted in the “For Family and Friends” section. It will help them understand what you’re going through and their role in your recovery. The information in this section will also help them understand that the changes they’ve witnessed in your behavior and personality are stereotypical of akathisia.
Getting a diagnosis
If you are currently having difficulty getting your doctor to diagnose akathisia, we recommend that you ask them to visit our website. The “For Clinicians” section emphasizes the importance of recognizing and diagnosing akathisia and provides tips to help them do so. It additionally illustrates the damage that can be caused by their failure to diagnose it.
We will provide additional tips to help you get an accurate diagnosis at a later date.
You are not alone
Our hearts go out to all of you suffering as we did. Although some of you may have temporarily lost the support of your family and friends, please know that you are not alone.